CYSTIC FIBROSIS FUNDRAISER CAMPAIGN
A Social Initiative by Namita Chawla
According to the Cystic Fibrosis Foundation Patient Registry, in the United States, more than 30,000 people are living with cystic fibrosis (more than 70,000 worldwide). Approximately 1,000 new cases of CF are diagnosed each year. More than 75 percent of people with CF are diagnosed by age 2. More than half of the CF population is age 18 or older. We depend on your support in order to improve lives and make the world a better place for generations to come. Join us today to learn all about volunteering and donating options.
WHO WE ARE AND WHAT WE DO
A fundraising campaign initiated by Namita Chawla for children suffering from cystic fibrosis in India who do not have the means to pay for their treatment.
- Breathe Easy Foundation is an organization founded by Miss Namita Chawla, a high school student from Pathways School, Gurgaon, India.
- She was deeply moved by the plight of underprivileged children below the age of 2 years who were diagnosed with this rare genetic disorder, causing damage to the lungs, pancreas and other vital organs of the body, eventually causing death.
- As such she was motivated to initiate a fundraising campaign through her organization to provide financial assistance to such children.
- Final Goal: Spread awareness about the disease Cystic Fibrosis to the community through various forms such as print, social media platforms and crowdfunding.
- Goal: To raise Rs. 75,000/. This money will go straight to the FuelADream platform, which will further be given to the family of an underprivileged child battling this disease.
Aggressive research on cystic fibrosis is going on in US to help combat the deadly genetic disorder. But what about the citizens of India? Who will help them?
Many Indians, even the financially stable ones, seem to be unaware about what this disease actually is? Though it is a considerably rare disease compared to the ones more common in local areas of India, each year there are thousands of CF patients, unable to get the treatment they deserve due to lack of awareness or financial aid.
With the ongoing environmental issues occurring in our nation, like the dangerous AQI levels, the quality of life for patients are severely hindered. Since this genetic disease is one for which a cure has not been found, all we can do is make the patients comfortable in their treatment and their complex way of life.
REQUESTING YOUR SUPPORT
Every person has the chance to make a change for good — no matter how big or small. Whatever amount you can give, or time you are willing to dedicate, know that your contribution makes a difference in the lives of others. Your donation, together with those of our other supporters, brings us ever closer to our goals. My goal is to raise awareness and funding of Rs. 75,000/. With your support, one underprivileged child, fighting the disease, will be able to afford medication, treatment and hospital stays for approximately six months. Do your part and help improve the quality of life for this child.
If you feel moved by the causes Cystic Fibrosis Awareness and Fundraiser Campaign promotes, we would very much appreciate your support. Set up your donation to Cystic Fibrosis Awareness and Fundraiser Campaign today. It’s easy and most importantly, it will make a major difference in the lives of so many who are in need of help. Contact us today to learn more or click below to donate now.
HOW TO DONATE
Simply click on the DONATE button on the top of the page. From there, select the "Gift Life" which will be your minimal donation of Rs. 500/. Next, adjust the quantity to the amount you would like to donate. From there, fill in your payment and shipping details. Your details will remain safe with us and there will be no shipment of any kind, just a transaction from your bank account to ours.
CAUSES, IMPACTS & TREATMENTS
Cystic Fibrosis is a chronic genetic disorder that causes thickened mucus to form in your lungs, pancreas and other organs in the body. Cystic fibrosis is considered a life-threatening condition, but its symptoms and severity can vary greatly depending on your age, the type of genetic mutation you have, and your overall health. Till date, no cure has been found for this disease. CF ultimately impacts multiple vital organs of your body and can cause other issues like infertility, osteoporosis, intestinal obstructions and much more. Therefore, all we can do help the patient to not suffer due to the many impacts and improve their quality of life. Treatments include treating and preventing lung infections, loosening and removing mucus from the lungs, maintaining lung function, treating and preventing blockages in the intestines, providing nutrition and preventing dehydration. In india, treatments and hospitals stays for a month, would generally cost 10,000 rupees, allowing my patient to receive an extra of about six to seven months of their life left, without worrying for financial aid.
HOSPITALS/NGO'S IN DELHI SUPPORTING TREATMENTS:
Sir GangaRam Hospital
Red Cross organizations